NIMH Data Archive - Data

Genomics

Neuroimaging

Phenotype¹

New Trial
Clinical Trial

¹ Numbers reported are subjects by age

New Project
Grant/Project Number

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

Select	Experiment Id	Experiment Name	Experiment Type	Created On

24	HI-NGS_R1	Omics	02/16/2011
475	MB1-10 (CHOP)	Omics	06/07/2016
490	Discovery and CRISPR validation of genetic factors associated with antipsychotic-induced weight gain and cardiometabolic risk	Omics	07/07/2016
501	PharmacoBOLD Resting State	fMRI	07/27/2016
506	PVPREF	Omics	08/05/2016
509	ABC-CT Resting v2	EEG	08/18/2016
13	Comparison of FI expression in Autistic and Neurotypical Homo Sapiens	Omics	12/28/2010
18	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	01/06/2011
22	Stitching PCR Sequencing	Omics	02/14/2011
26	ASD_Methylation	Omics	03/01/2011
29	Microarray family 03 (father, mother, sibling)	Omics	03/24/2011
37	Standard paired-end sequencing of BCRs	Omics	04/19/2011
38	Illumina Mate-Pair BCR sequencing	Omics	04/19/2011
39	Custom Jumping Libraries	Omics	04/19/2011
40	Custom CapBP	Omics	04/19/2011
41	Immunofluorescence	Omics	05/11/2011
43	Autism brain sample genotyping, Illumina	Omics	05/16/2011
47	ARRA Autism Sequencing Collaboration at Baylor. SOLiD 4 System	Omics	08/01/2011
53	AGRE Omni1-quad	Omics	10/11/2011
59	AGP genotyping	Omics	04/03/2012
60	Ultradeep 454 sequencing of synaptic genes from postmortem cerebella of individuals with ASD and neurotypical controls	Omics	06/23/2012
63	Microemulsion PCR and Targeted Resequencing for Variant Detection in ASD	Omics	07/20/2012
76	Whole Genome Sequencing in Autism Families	Omics	01/03/2013
519	Resting	fMRI	11/08/2016
90	Genotyped IAN Samples	Omics	07/09/2013
91	NJLAGS Axiom Genotyping Array	Omics	07/16/2013
93	AGP genotyping (CNV)	Omics	09/06/2013
106	Longitudinal Sleep Study. H20 200. Channel set 2	EEG	11/07/2013
107	Longitudinal Sleep Study. H20 200. Channel set 3	EEG	11/07/2013
108	Longitudinal Sleep Study. AURA 200	EEG	11/07/2013
105	Longitudinal Sleep Study. H20 200. Channel set 1	EEG	11/07/2013
109	Longitudinal Sleep Study. AURA 400	EEG	11/07/2013
116	Gene Expression Analysis WG-6	Omics	01/07/2014
131	Jeste Lab UCLA ACEii: Charlie Brown and Sesame Street - Project 1	Eye Tracking	02/27/2014
132	Jeste Lab UCLA ACEii: Animacy - Project 1	Eye Tracking	02/27/2014
133	Jeste Lab UCLA ACEii: Mom Stranger - Project 2	Eye Tracking	02/27/2014
134	Jeste Lab UCLA ACEii: Face Emotion - Project 3	Eye Tracking	02/27/2014
145	AGRE/FMR1_Illumina.JHU	Omics	04/14/2014
146	AGRE/MECP2_Sanger.JHU	Omics	04/14/2014
147	AGRE/MECP2_Junior.JHU	Omics	04/14/2014
151	Candidate Gene Identification in familial Autism	Omics	06/09/2014
152	NJLAGS Whole Genome Sequencing	Omics	07/01/2014
154	Math Autism Study - Vinod Menon	fMRI	07/15/2014
155	Resting	fMRI	07/25/2014
156	Speech	fMRI	07/25/2014
159	Emotion	fMRI	07/25/2014
160	syllable contrast	EEG	07/29/2014
167	School-age naturalistic stimuli	Eye Tracking	09/19/2014
44	AGRE/Broad Affymetrix 5.0 Genotype Experiment	Omics	06/27/2011
45	Exome Sequencing of 20 Sporadic Cases of Autism Spectrum Disorder	Omics	07/15/2011

Collection - Add Experiment

Add Supporting Documentation

Funding Source:
URL:

To add an existing Data Structure, enter its title in the search bar. If you need to request changes, select the indicator "No, it requires changes to meet research needs" after selecting the Structure, and upload the file with the request changes specific to the selected Data Structure. Your file should follow the Request Changes Procedure. If the Data Structure does not exist, select "Request New Data Structure" and upload the appropriate zip file.

Use/Modify Existing Data Structure

Request New Data Structure

Targeted Enrollment:

Initial Submission Date:

Initial Share Date:

Data Structure Search:

Data Structures:

Submit

Request Submission Exemption

Not Eligible

The Data Expected list for this Collection shows some raw data as missing. Contact the NDA Help Desk with any questions.

Please confirm that you will not be enrolling any more subjects and that all raw data has been collected and submitted.

Collection Updated

Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.

[CMS] Error

[CMS]

Unable to change collection phase where targeted enrollment is less than 90%

You have requested to move the sharing dates for the following assessments:

Data Expected Item	Original Sharing Date	New Sharing Date

Please provide a reason for this change, which will be sent to the Program Officers listed within this collection:

Explanation must be between 20 and 200 characters in length.

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Brain trajectories in ADHD #2857

General
Experiments (6)
Shared Data
Publications (75)
Data Expected (82)
Associated Studies (5)

Collection Title	Collection Investigators	Collection Description
Collection Title:	Brain trajectories in ADHD
Collection Investigators:	Damien Fair
Collection Description:	The Oregon-ADHD-1000 is a local community-recruited cohort of several hundred children followed for up to 12 years. By enrolling children aged 7-12 and following for up to 12 years, it constitutes a lag-longitudinal age-based design from age 7-24, depending on data density needs for particular analyses. The design is an ADHD case-control design, with cases identified by a multi-stage case-finding procedure in the community. Thus, the cohort features children with ADHD, typically developing children without ADHD, and additional children who were sub-threshold. Over 1400 children have baseline data, over 800 have neuropsychological data, and over 600 have longitudinal data. The resource features several distinctive advantage for research on ADHD developmental course, outcome, mechanism, and etiology. It includes multilevel data featuring (a) clinical phenotyping via multi-informant, multi-method reporting and clinical consensus diagnoses, (b) temperament, (c) neuropsychology and cognition, (d) peripheral physiology, (e) MRI brain imaging including structural, diffusion, and resting state functional data, (f) genome wide chip data, (h) epigenome-wide chip data (DNA methylation) from salivary DNA. This combination of longitudinal data, including repeat scanning, repeat deep clinical phenotyping, and DNA over this long of a developmental period remains exceedingly rare in the field. The cohort has already been used for over 100 papers and conference presentations. Its creation was supported by multiple NIMH grants. The cohort is housed in two companion collections: Collection 2857 holds the data from baseline to year 8. That collection is expected to be complete and locked by the end of 2021. Collection 3222 holds the data from year 9 to year 12. The list of grants supporting each collection is below. ---------------------------------------------------------------------------------------------------------------------------------------- Collect. Grant Status C-PI Title ------------------------------------------------------------------------------------------------------------------------------------------ 2857 R01MH115357 2017-2022 Fair Brain trajectories in ADHD 2R37MH59105 2019-2023 Nigg ADHD heterogeneity, mechanisms, and risk profile 1R01MH86654 completed Nigg Longitudinal Imaging Study of ADHD Brain development R01MH099064 completed Nigg ADHD biotypes using genetic and imaging approaches 2R56MH086654 completed Nigg Longitudinal brain imaging of ADHD in adolescentâ¦ 1R37MH59105 completed Nigg ADHD heterogeneity, mechanisms, and risk profile 3222 R01MH115357 2017-2022 Fair Brain trajectories in ADHD 2R37MH59105 2019-2023 Nigg ADHD heterogeneity, mechanisms, and risk profile --------------------------------------------------------------------------------------------------------------------------------------------
Data Repository:	NIMH Data Archive
Permission Group:
Collection Creation Date:	02/14/2018
Collection Phase:	Funding Completed
Collection Sub-Phase:	Close Out
Blinded Clinical Trial:	No
Total Funded Amount:	$1,555,516.00
Subjects Shared:	2,478
Collection DOI:	10.15154/9y04-tr82

{"values":[]}

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Funding Sources:

Funding Source Name	Funding Source URL
NIH - Extramural	None

Supporting Documentation:

File Name	File Type	Description	Audience
Supporting documentation for NDA collection #2857_#3222_jt.docx	Software		Qualified Researchers
ADHD Lab all Measures_withNDAstatus_2025.xlsx	Methods	This is a list of all measures administered in the study, which years they were administered, and whether they were uploaded to the NDA database.	Qualified Researchers

Grant Information:

Project Number	Title	Start Date	Original End Date	End Date	Planned Enrollment	Actual Enrollment	Organization	Funds Obligated
R01MH115357-01	Brain trajectories in ADHD	09/12/2017	07/31/2022	07/31/2022	376	329	OREGON HEALTH & SCIENCE UNIVERSITY	$1,555,516.00

Clinical Trials:

helpcenter.collection.general-tab

Collection - General Tab

Fields available for edit on the top portion of the page include:

Collection Title
Investigators
Collection Description
Collection Phase
Funding Source
Clinical Trials

Collection Phase: The current status of a research project submitting data to an NDA Collection, based on the timing of the award and/or the data that have been submitted.

Pre-Enrollment: The default entry made when the NDA Collection is created.
Enrolling: Data have been submitted to the NDA Collection or the NDA Data Expected initial submission date has been reached for at least one data structure category in the NDA Collection.
Data Analysis: Subject level data collection for the research project is completed and has been submitted to the NDA Collection. The NDA Collection owner or the NDA Help Desk may set this phase when they’ve confirmed data submission is complete and submitted subject counts match at least 90% of the target enrollment numbers in the NDA Data Expected. Data submission reminders will be turned off for the NDA Collection.
Funding Completed: The NIH grant award (or awards) associated with the NDA Collection has reached its end date. NDA Collections in Funding Completed phase are assigned a subphase to indicate the status of data submission.
- The Data Expected Subphase indicates that NDA expects more data will be submitted
- The Closeout Subphase indicates the data submission is complete.
- The Sharing Not Met Subphase indicates that data submission was not completed as expected.

Blinded Clinical Trial Status:

This status is set by a Collection Owner and indicates the research project is a double blinded clinical trial. When selected, the public view of Data Expected will show the Data Expected items and the Submission Dates, but the targeted enrollment and subjects submitted counts will not be displayed.
Targeted enrollment and subjects submitted counts are visible only to NDA Administrators and to the NDA Collection or as the NDA Collection Owner.
When an NDA Collection that is flagged Blinded Clinical Trial reaches the maximum data sharing date for that Data Repository (see https://nda.nih.gov/nda/sharing-regimen.html), the embargo on Data Expected information is released.

Funding Source

The organization(s) responsible for providing the funding is listed here.

Supporting Documentation

Users with Submission privileges, as well as Collection Owners, Program Officers, and those with Administrator privileges, may upload and attach supporting documentation. By default, supporting documentation is shared to the general public, however, the option is also available to limit this information to qualified researchers only.

Grant Information

Identifiable details are displayed about the Project of which the Collection was derived from. You may click in the Project Number to view a full report of the Project captured by the NIH.

Clinical Trials

Any data that is collected to support or further the research of clinical studies will be available here. Collection Owners and those with Administrator privileges may add new clinical trials.

Frequently Asked Questions

How does the NIMH Data Archive (NDA) determine which Permission Group data are submitted into?

During Collection creation, NDA staff determine the appropriate Permission Group based on the type of data to be submitted, the type of access that will be available to data access users, and the information provided by the Program Officer during grant award.
How do I know when a NDA Collection has been created?

When a Collection is created by NDA staff, an email notification will automatically be sent to the PI(s) of the grant(s) associated with the Collection to notify them.
Is a single grant number ever associated with more than one Collection?

The NDA system does not allow for a single grant to be associated with more than one Collection; therefore, a single grant will not be listed in the Grant Information section of a Collection for more than one Collection.
Why is there sometimes more than one grant included in a Collection?

In general, each Collection is associated with only one grant; however, multiple grants may be associated if the grant has multiple competing segments for the same grant number or if multiple different grants are all working on the same project and it makes sense to hold the data in one Collection (e.g., Cooperative Agreements).

Glossary

Administrator Privilege

A privilege provided to a user associated with an NDA Collection or NDA Study whereby that user can perform a full range of actions including providing privileges to other users.
Collection Owner

Generally, the Collection Owner is the contact PI listed on a grant. Only one NDA user is listed as the Collection owner. Most automated emails are primarily sent to the Collection Owner.
Collection Phase
The Collection Phase provides information on data submission as opposed to grant/project completion so while the Collection phase and grant/project phase may be closely related they are often different. Collection users with Administrative Privileges are encouraged to edit the Collection Phase. The Program Officer as listed in eRA (for NIH funded grants) may also edit this field. Changes must be saved by clicking the Save button at the bottom of the page. This field is sortable alphabetically in ascending or descending order. Collection Phase options include:
- Pre-Enrollment: A grant/project has started, but has not yet enrolled subjects.
- Enrolling: A grant/project has begun enrolling subjects. Data submission is likely ongoing at this point.
- Data Analysis: A grant/project has completed enrolling subjects and has completed all data submissions.
- Funding Completed: A grant/project has reached the project end date.
Collection Title

An editable field with the title of the Collection, which is often the title of the grant associated with the Collection.
Grant

Provides the grant number(s) for the grant(s) associated with the Collection. The field is a hyperlink so clicking on the Grant number will direct the user to the grant information in the NIH Research Portfolio Online Reporting Tools (RePORT) page.
Supporting Documentation

Various documents and materials to enable efficient use of the data by investigators unfamiliar with the project and may include the research protocol, questionnaires, and study manuals.
NIH Research Initiative

NDA Collections may be organized by scientific similarity into NIH Research Initiatives, to facilitate query tool user experience. NIH Research Initiatives map to one or multiple Funding Opportunity Announcements.
Permission Group

Access to shared record-level data in NDA is provisioned at the level of a Permission Group. NDA Permission Groups consist of one or multiple NDA Collections that contain data with the same subject consents.
Planned Enrollment

Number of human subject participants to be enrolled in an NIH-funded clinical research study. The data is provided in competing applications and annual progress reports.
Actual Enrollment

Number of human subjects enrolled in an NIH-funded clinical research study. The data is provided in annual progress reports.
NDA Collection

A virtual container and organization structure for data and associated documentation from one grant or one large project/consortium. It contains tools for tracking data submission and allows investigators to define a wide array of other elements that provide context for the data, including all general information regarding the data and source project, experimental parameters used to collect any event-based data contained in the Collection, methods, and other supporting documentation. They also allow investigators to link underlying data to an NDA Study, defining populations and subpopulations specific to research aims.
Data Use Limitations

Data Use Limitations (DULs) describe the appropriate secondary use of a dataset and are based on the original informed consent of a research participant. NDA only accepts consent-based data use limitations defined by the NIH Office of Science Policy.
Total Subjects Shared

The total number of unique subjects for whom data have been shared and are available for users with permission to access data.

Contact NDA Help Desk

ID	Name	Created Date	Status	Type
1530	Resting State fMRI	02/24/2020	Approved	fMRI
1608	Genotyping Experiment	10/23/2020	Approved	Omics
2781	Resting Baseline	12/20/2024	Approved	EEG
2782	Go-no-go Happy	12/20/2024	Approved	EEG
2783	Go-no-go Gender	12/20/2024	Approved	EEG
2784	Go-no-go Fear	12/20/2024	Approved	EEG

helpcenter.collection.experiments-tab

Collection - Experiments

The number of Experiments included is displayed in parentheses next to the tab name. You may download all experiments associated with the Collection via the Download button. You may view individual experiments by clicking the Experiment Name and add them to the Filter Cart via the Add to Cart button.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may create or edit an Experiment.

Please note: The creation of an NDA Experiment does not necessarily mean that data collected, according to the defined Experiment, has been submitted or shared.

Frequently Asked Questions

Can an Experiment be associated with more than one Collection?
Yes -see the “Copy” button in the bottom left when viewing an experiment. There are two actions that can be performed via this button:
1. Copy the experiment with intent for modifications.
2. Associate the experiment to the collection. No modifications can be made to the experiment.

Glossary

Experiment Status

An Experiment must be Approved before data using the associated Experiment_ID may be uploaded.
Experiment ID

The ID number automatically generated by NDA which must be included in the appropriate file when uploading data to link the Experiment Definition to the subject record.

Contact NDA Help Desk

Shared Data:

Title	Type	Number of Subjects
ADHD Rating Scale	Clinical Assessments	2434
Academic Performance Rating System	Clinical Assessments	359
Adult ADHD Self-Report Scale Screener	Clinical Assessments	106
Adult Behavior Check List	Clinical Assessments	12
Adult Impairment Rating Scale	Clinical Assessments	122
Adult Self Report	Clinical Assessments	963
Affective Reactivity Index	Clinical Assessments	126
Alabama Parenting Questionnaire	Clinical Assessments	618
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3	Clinical Assessments	80
BASC Parent Rating Scale Adolescent	Clinical Assessments	57
BASC Parent Rating Scale Child	Clinical Assessments	119
Barkley Deficits in Executive Functioning Scale	Clinical Assessments	106
Brief Inventory of Thriving	Clinical Assessments	106
Child Depression Inventory (CDI)	Clinical Assessments	1407
Children Sleep Habit	Clinical Assessments	823
Children's Communication Checklist - 2	Clinical Assessments	192
Children's Perception of Interparental Conflict Scale	Clinical Assessments	631
Children's Perception of Interparental Conflict Scale for Younger Children	Clinical Assessments	1264
Common Language Q-Sort	Clinical Assessments	861
Conflict Tactics Scale	Clinical Assessments	505
Conners 3	Clinical Assessments	1473
Conners Adult ADHD Rating Scales	Clinical Assessments	970
Continuous Performance Test	Clinical Assessments	1293
Customary Drinking and Drug Use Record	Clinical Assessments	431
Delay Discounting Task	Clinical Assessments	808
Delis-Kaplan Executive Function System	Clinical Assessments	1337
Developmental History and Substance Use Scale	Clinical Assessments	869
Diagnostic Team Data	Clinical Assessments	1471
Dietary Questionnaire	Clinical Assessments	106
Drug Screen	Clinical Assessments	395
EEG Subject Files	Imaging	269
Early Adolescent Temperament Questionnaire	Clinical Assessments	505
Edinburgh Handedness Inventory	Clinical Assessments	1460
Education and Employment History	Clinical Assessments	152
Environmental Influences on Child Health Outcomes - Child Parent-Report	Clinical Assessments	31
Environmental Influences on Child Health Outcomes - Child Self-Report	Clinical Assessments	26
Family Environment Scale	Clinical Assessments	857
Five Minute Speech Sample	Clinical Assessments	611
Genomics Sample	Genomics	770
Godin Leisure-Time Exercise Questionnaire	Clinical Assessments	106
Image	Imaging	645
International Physical Activity Questionnaire	Clinical Assessments	106
Internet Addiction Test	Clinical Assessments	106
Inventory of Callous-Unemotional Traits	Clinical Assessments	853
Kiddie-Sads CD CU	Clinical Assessments	1478
Kiddie-Sads Current Diagnoses	Clinical Assessments	2343
Kiddie-Sads Depression	Clinical Assessments	1478
Kiddie-Sads ODD	Clinical Assessments	1478
Medical Demographics	Clinical Assessments	872
Multidimensional Anxiety Scale for Children Parent and Self	Clinical Assessments	1414
N-Back Task	Clinical Assessments	853
NEO Five-Factor Inventory Form S Adult	Clinical Assessments	895
NEO Personality Inventory	Clinical Assessments	106
NIMH Medical History Questionnaire	Clinical Assessments	106
Nam Powers Boyd Job Ranking (2000 census)	Clinical Assessments	1478
O'Leary Porter Scale	Clinical Assessments	849
Parent Stress Index	Clinical Assessments	864
Parental Involvement	Clinical Assessments	26
Peer Group Deviance	Clinical Assessments	493
Perceived Stress Scale	Clinical Assessments	904
Pittsburgh Sleep Quality Index	Clinical Assessments	106
Processed MRI Data	Imaging	647
Pubertal Development Scale	Clinical Assessments	1233
Research Subject	Clinical Assessments	2445
SCID-V Research Version	Clinical Assessments	27
SRS-2. Adult, Preschool and School Age	Clinical Assessments	469
Schizotypal Personality Questionnaire	Clinical Assessments	28
School Social Environment	Clinical Assessments	490
Social Communication Questionnaire (SCQ) - Current Form	Clinical Assessments	715
Social Skills Rating System	Clinical Assessments	496
Social Skills Rating System - Grades 7-12 Parent	Clinical Assessments	471
Sociodemographics	Clinical Assessments	855
Spatial Span Task	Clinical Assessments	858
Stop Signal Test	Clinical Assessments	1247
Strengths and Difficulties Questionnaire	Clinical Assessments	1471
Strengths and Weakness of ADHD Symptoms and Normal Behavior	Clinical Assessments	1462
Stressful Life Events Questionnaire (SLEQ)	Clinical Assessments	46
Structured Clinical Interview for DSM-IV: Psychiatric History	Clinical Assessments	851
Subjective Happiness Scale	Clinical Assessments	106
Tapping Task	Clinical Assessments	852
Teen Substance Use	Clinical Assessments	489
Temperament in Middle Childhood Questionnaire	Clinical Assessments	1456
UPPS Impulsive Behavior Scale	Clinical Assessments	493
Wechsler Adult Intelligence Scale Fourth Edition [part 1]	Clinical Assessments	86
Wechsler Adult Intelligence Scale III	Clinical Assessments	766
Wechsler Individual Achievement Test Second Edition	Clinical Assessments	1468
Wechsler Intelligence Scale for Children - IV [part 1]	Clinical Assessments	869
Wechsler Intelligence Scale for Children - IV [part 2]	Clinical Assessments	1468
Wide Range Achievement Test 4 (WRAT4)	Clinical Assessments	766
Youth Risk Behavior Survey	Clinical Assessments	492
Youth Self Report	Clinical Assessments	492

helpcenter.collection.shared-data-tab

Collection - Shared Data

This tab provides a quick overview of the Data Structure title, Data Type, and Number of Subjects that are currently Shared for the Collection. The information presented in this tab is automatically generated by NDA and cannot be edited. If no information is visible on this tab, this would indicate the Collection does not have shared data or the data is private.

The shared data is available to other researchers who have permission to access data in the Collection's designated Permission Group(s). Use the Download button to get all shared data from the Collection to the Filter Cart.

Frequently Asked Questions

How will I know if another researcher uses data that I shared through the NIMH Data Archive (NDA)?

To see what data your project have submitted are being used by a study, simply go the Associated Studies tab of your collection. Alternatively, you may review an NDA Study Attribution Report available on the General tab.
Can I get a supplement to share data from a completed research project?

Often it becomes more difficult to organize and format data electronically after the project has been completed and the information needed to create a GUID may not be available; however, you may still contact a program staff member at the appropriate funding institution for more information.
Can I get a supplement to share data from a research project that is still ongoing?

Unlike completed projects where researchers may not have the information needed to create a GUID and/or where the effort needed to organize and format data becomes prohibitive, ongoing projects have more of an opportunity to overcome these challenges. Please contact a program staff member at the appropriate funding institution for more information.

Glossary

Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Type

A grouping of data by similar characteristics such as Clinical Assessments, Omics, or Neurosignal data.
Shared

The term 'Shared' generally means available to others; however, there are some slightly different meanings based on what is Shared. A Shared NDA Study is viewable and searchable publicly regardless of the user's role or whether the user has an NDA account. A Shared NDA Study does not necessarily mean that data used in the NDA Study have been shared as this is independently determined. Data are shared according the schedule defined in a Collection's Data Expected Tab and/or in accordance with data sharing expectations in the NDA Data Sharing Terms and Conditions. Additionally, Supporting Documentation uploaded to a Collection may be shared independent of whether data are shared.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDA data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed ID	Study	Title	Journal	Authors	Date	Status
41448140	Create Study	Stimulant medications affect arousal and reward, not attention networks.	Cell	Kay, Benjamin P; Wheelock, Muriah D; Siegel, Joshua S; Raut, Ryan V; Chauvin, Roselyne J; Metoki, Athanasia; Rajesh, Aishwarya; Eck, Andrew; Pollaro, Jim; Wang, Anxu; Suljic, Vahdeta; Adeyemo, Babatunde; Baden, Noah J; Scheidter, Kristen M; Monk, Julia S; Whiting, Forrest I; Ramirez-Perez, Nadeshka; Krimmel, Samuel R; Shinohara, Russell T; Tervo-Clemmens, Brenden; Hermosillo, Robert J M; Nelson, Steven M; Hendrickson, Timothy J; Madison, Thomas; Moore, Lucille A; Miranda-Domínguez, Óscar; Randolph, Anita; Feczko, Eric; Roland, Jarod L; Nicol, Ginger E; Laumann, Timothy O; Marek, Scott; Gordon, Evan M; Raichle, Marcus E; Barch, Deanna M; Fair, Damien A; Dosenbach, Nico U F	December 24, 2025	Not Determined
40914754	Create Study	Consortium profile: the methylation, imaging and NeuroDevelopment (MIND) consortium.	Molecular psychiatry	Schuurmans, Isabel K; Mulder, Rosa H; Baltramonaityte, Vilte; Lahtinen, Alexandra; Qiuyu, Fan; Rothmann, Leonardo Melo; Staginnus, Marlene; Tuulari, Jetro J; Burt, S Alexandra; Buss, Claudia; Craig, Jeffrey M; Donald, Kirsten A; Eriksson, Johan G; Felix, Janine F; Freeman, Tom P; Grassi-Oliveira, Rodrigo; Huels, Anke; Hyde, Luke W; Jones, Scott A; Karlsson, Hasse; Karlsson, Linnea; Koen, Nastassja; Lawn, Will; Mitchell, Colter; Monk, Christopher S; Mooney, Michael A; Muetzel, Ryan; Nigg, Joel T; Belangero, Síntia Iole Nogueira; Notterman, Daniel; Ong, Yi Ying; O'Connor, Tom; O'Donnell, Kieran J; Pan, Pedro Mario; Paunio, Tiina; Ryabinin, Peter; Saffery, Richard; Salum, Giovanni A; Seal, Marc; Silk, Tim J; Stein, Dan J; Tan, Ai Peng; Teh, Ai Ling; Wang, Dennis; Zar, Heather; Walton, Esther; Cecil, Charlotte A M	February 1, 2026	Not Determined
40475604	Create Study	Stimulant medications affect arousal and reward, not attention.	bioRxiv : the preprint server for biology	Kay, Benjamin P; Wheelock, Muriah D; Siegel, Joshua S; Raut, Ryan; Chauvin, Roselyne J; Metoki, Athanasia; Rajesh, Aishwarya; Eck, Andrew; Pollaro, Jim; Wang, Anxu; Suljic, Vahdeta; Adeyemo, Babatunde; Baden, Noah J; Scheidter, Kristen M; Monk, Julia; Ramirez-Perez, Nadeshka; Krimmel, Samuel R; Shinohara, Russel T; Tervo-Clemmens, Brenden; Hermosillo, Robert J M; Nelson, Steven M; Hendrickson, Timothy J; Madison, Thomas; Moore, Lucille A; Miranda-Domínguez, Óscar; Randolph, Anita; Feczko, Eric; Roland, Jarod L; Nicol, Ginger E; Laumann, Timothy O; Marek, Scott; Gordon, Evan M; Raichle, Marcus E; Barch, Deanna M; Fair, Damien A; Dosenbach, Nico U F	May 22, 2025	Not Determined
40210909	Create Study	The human brainstem''s red nucleus was upgraded to support goal-directed action.	Nature communications	Krimmel, Samuel R; Laumann, Timothy O; Chauvin, Roselyne J; Hershey, Tamara; Roland, Jarod L; Shimony, Joshua S; Willie, Jon T; Norris, Scott A; Marek, Scott; N Van, Andrew; Wang, Anxu; Monk, Julia; Scheidter, Kristen M; Whiting, Forrest I; Ramirez-Perez, Nadeshka; Metoki, Athanasia; Baden, Noah J; Kay, Benjamin P; Siegel, Joshua S; Nahman-Averbuch, Hadas; Snyder, Abraham Z; Fair, Damien A; Lynch, Charles J; Raichle, Marcus E; Gordon, Evan M; Dosenbach, Nico U F	April 10, 2025	Not Determined
39604734	Create Study	Study design features increase replicability in brain-wide association studies.	Nature	Kang, Kaidi; Seidlitz, Jakob; Bethlehem, Richard A I; Xiong, Jiangmei; Jones, Megan T; Mehta, Kahini; Keller, Arielle S; Tao, Ran; Randolph, Anita; Larsen, Bart; Tervo-Clemmens, Brenden; Feczko, Eric; Dominguez, Oscar Miranda; Nelson, Steven M; Lifespan Brain Chart Consortium; Schildcrout, Jonathan; Fair, Damien A; Satterthwaite, Theodore D; Alexander-Bloch, Aaron; Vandekar, Simon	December 1, 2024	Not Determined
38978656	Create Study	Consortium Profile: The Methylation, Imaging and NeuroDevelopment (MIND) Consortium.	medRxiv : the preprint server for health sciences	Schuurmans, Isabel K; Mulder, Rosa H; Baltramonaityte, Vilte; Lahtinen, Alexandra; Qiuyu, Fan; Rothmann, Leonardo Melo; Staginnus, Marlene; Tuulari, Jetro; Burt, S Alexandra; Buss, Claudia; Craig, Jeffrey M; Donald, Kirsten A; Felix, Janine F; Freeman, Tom P; Grassi-Oliveira, Rodrigo; Huels, Anke; Hyde, Luke W; Jones, Scott A; Karlsson, Hasse; Karlsson, Linnea; Koen, Nastassja; Lawn, Will; Mitchell, Colter; Monk, Christopher S; Mooney, Michael A; Muetzel, Ryan; Nigg, Joel T; Belangero, Síntia Iole Nogueira; Notterman, Daniel; O'Connor, Tom; O'Donnell, Kieran J; Pan, Pedro Mario; Paunio, Tiina; Ryabinin, Peter; Saffery, Richard; Salum, Giovanni A; Seal, Marc; Silk, Tim J; Stein, Dan J; Zar, Heather; Walton, Esther; Cecil, Charlotte A M	June 25, 2024	Not Determined
38532024	Create Study	A precision functional atlas of personalized network topography and probabilities.	Nature neuroscience	Hermosillo, Robert J M; Moore, Lucille A; Feczko, Eric; Miranda-Domínguez, Óscar; Pines, Adam; Dworetsky, Ally; Conan, Gregory; Mooney, Michael A; Randolph, Anita; Graham, Alice; Adeyemo, Babatunde; Earl, Eric; Perrone, Anders; Carrasco, Cristian Morales; Uriarte-Lopez, Johnny; Snider, Kathy; Doyle, Olivia; Cordova, Michaela; Koirala, Sanju; Grimsrud, Gracie J; Byington, Nora; Nelson, Steven M; Gratton, Caterina; Petersen, Steven; Feldstein Ewing, Sarah W; Nagel, Bonnie J; Dosenbach, Nico U F; Satterthwaite, Theodore D; Fair, Damien A	May 1, 2024	Not Determined
38286629	Create Study	Cumulative Effects of Resting-State Connectivity Across All Brain Networks Significantly Correlate with Attention-Deficit Hyperactivity Disorder Symptoms.	The Journal of neuroscience : the official journal of the Society for Neuroscience	Mooney, Michael A; Hermosillo, Robert J M; Feczko, Eric; Miranda-Dominguez, Oscar; Moore, Lucille A; Perrone, Anders; Byington, Nora; Grimsrud, Gracie; Rueter, Amanda; Nousen, Elizabeth; Antovich, Dylan; Feldstein Ewing, Sarah W; Nagel, Bonnie J; Nigg, Joel T; Fair, Damien A	March 6, 2024	Not Determined
38260662	Create Study	The brainstem''s red nucleus was evolutionarily upgraded to support goal-directed action.	bioRxiv : the preprint server for biology	Krimmel, Samuel R; Laumann, Timothy O; Chauvin, Roselyne J; Hershey, Tamara; Roland, Jarod L; Shimony, Joshua S; Willie, Jon T; Norris, Scott A; Marek, Scott; Van, Andrew N; Monk, Julia; Scheidter, Kristen M; Whiting, Forrest; Ramirez-Perez, Nadeshka; Metoki, Athanasia; Wang, Anxu; Kay, Benjamin P; Nahman-Averbuch, Hadas; Fair, Damien A; Lynch, Charles J; Raichle, Marcus E; Gordon, Evan M; Dosenbach, Nico U F	January 1, 2024	Not Determined
38077010	Create Study	Framewise multi-echo distortion correction for superior functional MRI.	bioRxiv : the preprint server for biology	Van, Andrew N; Montez, David F; Laumann, Timothy O; Suljic, Vahdeta; Madison, Thomas; Baden, Noah J; Ramirez-Perez, Nadeshka; Scheidter, Kristen M; Monk, Julia S; Whiting, Forrest I; Adeyemo, Babatunde; Chauvin, Roselyne J; Krimmel, Samuel R; Metoki, Athanasia; Rajesh, Aishwarya; Roland, Jarod L; Salo, Taylor; Wang, Anxu; Weldon, Kimberly B; Sotiras, Aristeidis; Shimony, Joshua S; Kay, Benjamin P; Nelson, Steven M; Tervo-Clemmens, Brenden; Marek, Scott A; Vizioli, Luca; Yacoub, Essa; Satterthwaite, Theodore D; Gordon, Evan M; Fair, Damien A; Tisdall, M Dylan; Dosenbach, Nico U F	November 29, 2023	Not Determined
38045258	Create Study	XCP-D: A Robust Pipeline for the post-processing of fMRI data.	bioRxiv : the preprint server for biology	Mehta, Kahini; Salo, Taylor; Madison, Thomas; Adebimpe, Azeez; Bassett, Danielle S; Bertolero, Max; Cieslak, Matthew; Covitz, Sydney; Houghton, Audrey; Keller, Arielle S; Luo, Audrey; Miranda-Dominguez, Oscar; Nelson, Steve M; Shafiei, Golia; Shanmugan, Sheila; Shinohara, Russell T; Sydnor, Valerie J; Feczko, Eric; Fair, Damien A; Satterthwaite, Theodore D	November 21, 2023	Not Determined
37972450	Create Study	Motor networks, but also non-motor networks predict motor signs in Parkinson''s disease.	NeuroImage. Clinical	Ragothaman, Anjanibhargavi; Mancini, Martina; Nutt, John G; Wang, Junping; Fair, Damien A; Horak, Fay B; Miranda-Dominguez, Oscar	January 1, 2023	Not Determined
37076628	Create Study	A somato-cognitive action network alternates with effector regions in motor cortex.	Nature	Gordon, Evan M; Chauvin, Roselyne J; Van, Andrew N; Rajesh, Aishwarya; Nielsen, Ashley; Newbold, Dillan J; Lynch, Charles J; Seider, Nicole A; Krimmel, Samuel R; Scheidter, Kristen M; Monk, Julia; Miller, Ryland L; Metoki, Athanasia; Montez, David F; Zheng, Annie; Elbau, Immanuel; Madison, Thomas; Nishino, Tomoyuki; Myers, Michael J; Kaplan, Sydney; Badke D'Andrea, Carolina; Demeter, Damion V; Feigelis, Matthew; Ramirez, Julian S B; Xu, Ting; Barch, Deanna M; Smyser, Christopher D; Rogers, Cynthia E; Zimmermann, Jan; Botteron, Kelly N; Pruett, John R; Willie, Jon T; Brunner, Peter; Shimony, Joshua S; Kay, Benjamin P; Marek, Scott; Norris, Scott A; Gratton, Caterina; Sylvester, Chad M; Power, Jonathan D; Liston, Conor; Greene, Deanna J; Roland, Jarod L; Petersen, Steven E; Raichle, Marcus E; Laumann, Timothy O; Fair, Damien A; Dosenbach, Nico U F	May 1, 2023	Not Determined
36890374	Create Study	Reply to: Multivariate BWAS can be replicable with moderate sample sizes.	Nature	Tervo-Clemmens, Brenden; Marek, Scott; Chauvin, Roselyne J; Van, Andrew N; Kay, Benjamin P; Laumann, Timothy O; Thompson, Wesley K; Nichols, Thomas E; Yeo, B T Thomas; Barch, Deanna M; Luna, Beatriz; Fair, Damien A; Dosenbach, Nico U F	March 1, 2023	Not Determined
36848718	Create Study	The Oregon ADHD-1000: A new longitudinal data resource enriched for clinical cases and multiple levels of analysis.	Developmental cognitive neuroscience	Nigg, Joel T; Karalunas, Sarah L; Mooney, Michael A; Wilmot, Beth; Nikolas, Molly A; Martel, Michelle M; Tipsord, Jessica; Nousen, Elizabeth K; Schmitt, Colleen; Ryabinin, Peter; Musser, Erica D; Nagel, Bonnie J; Fair, Damien A	April 1, 2023	Not Determined
36817187	Create Study	Attention-deficit/hyperactivity disorder and white matter microstructure: the importance of dimensional analyses and sex differences.	JCPP advances	Jones, Scott A; Nagel, Bonnie J; Nigg, Joel T; Karalunas, Sarah L	December 1, 2022	Not Determined
36804107	Create Study	A preliminary study of white matter correlates of a laboratory measure of attention and motor stability in attention-deficit/hyperactivity disorder.	Journal of psychiatric research	Jones, Scott A; Tipsord, Jessica; Nagel, Bonnie J; Nigg, Joel T	April 1, 2023	Not Determined
36803653	Create Study	Development of top-down cortical propagations in youth.	Neuron	Pines, Adam; Keller, Arielle S; Larsen, Bart; Bertolero, Maxwell; Ashourvan, Arian; Bassett, Dani S; Cieslak, Matthew; Covitz, Sydney; Fan, Yong; Feczko, Eric; Houghton, Audrey; Rueter, Amanda R; Saggar, Manish; Shafiei, Golia; Tapera, Tinashe M; Vogel, Jacob; Weinstein, Sarah M; Shinohara, Russell T; Williams, Leanne M; Fair, Damien A; Satterthwaite, Theodore D	April 19, 2023	Not Determined
36368603	Create Study	Does Cueing Need Attention? A Pilot Study in People with Parkinson''s Disease.	Neuroscience	Silva-Batista, Carla; Miranda-Domínguez, Óscar; Ragothaman, Anjanibhargavi; Fair, Damien A; Mantovani, Alessandra; Stuart, Sam; Nutt, John G; Horak, Fay B; Mancini, Martina	December 15, 2022	Not Determined
36220605	Create Study	Annual Research Review: Perspectives on progress in ADHD science - from characterization to cause.	Journal of child psychology and psychiatry, and allied disciplines	Sonuga-Barke, Edmund J S; Becker, Stephen P; Bölte, Sven; Castellanos, Francisco Xavier; Franke, Barbara; Newcorn, Jeffrey H; Nigg, Joel T; Rohde, Luis Augusto; Simonoff, Emily	April 1, 2023	Not Determined
35970984	Create Study	Precision dynamical mapping using topological data analysis reveals a hub-like transition state at rest.	Nature communications	Saggar, Manish; Shine, James M; Liégeois, Raphaël; Dosenbach, Nico U F; Fair, Damien	August 15, 2022	Not Determined
35927072	Create Study	Linking Individual Differences in Personalized Functional Network Topography to Psychopathology in Youth.	Biological psychiatry	Cui, Zaixu; Pines, Adam R; Larsen, Bart; Sydnor, Valerie J; Li, Hongming; Adebimpe, Azeez; Alexander-Bloch, Aaron F; Bassett, Dani S; Bertolero, Max; Calkins, Monica E; Davatzikos, Christos; Fair, Damien A; Gur, Ruben C; Gur, Raquel E; Moore, Tyler M; Shanmugan, Sheila; Shinohara, Russell T; Vogel, Jacob W; Xia, Cedric H; Fan, Yong; Satterthwaite, Theodore D	December 15, 2022	Not Determined
35528460	Create Study	Pragmatic Language Markers of Autism Diagnosis and Severity.	Research in autism spectrum disorders	Dolata, Jill K; Suarez, Shannon; Calamé, Beth; Fombonne, Eric	June 1, 2022	Not Determined
35460329	Create Study	Combining voice and language features improves automated autism detection.	Autism research : official journal of the International Society for Autism Research	MacFarlane, Heather; Salem, Alexandra C; Chen, Liu; Asgari, Meysam; Fombonne, Eric	July 1, 2022	Not Determined
35427730	Create Study	Attention-Deficit/Hyperactivity Disorder: Restricted Phenotypes Prevalence, Comorbidity, and Polygenic Risk Sensitivity in the ABCD Baseline Cohort.	Journal of the American Academy of Child and Adolescent Psychiatry	Cordova, Michaela M; Antovich, Dylan M; Ryabinin, Peter; Neighbor, Christopher; Mooney, Michael A; Dieckmann, Nathan F; Miranda-Dominguez, Oscar; Nagel, Bonnie J; Fair, Damien A; Nigg, Joel T	October 1, 2022	Not Determined

helpcenter.collection.publications-tab

Collection - Publications

The number of Publications is displayed in parentheses next to the tab name. Clicking on any of the Publication Titles will open the Publication in a new internet browsing tab.

Collection Owners, Program Officers, and users with Submission or Administrative Privileges for the Collection may mark a publication as either Relevant or Not Relevant in the Status column.

Frequently Asked Questions

How can I determine if a publication is relevant?

Publications are considered relevant to a collection when the data shared is directly related to the project or collection.
Where does the NDA get the publications?

PubMed, an online library containing journals, articles, and medical research. Sponsored by NiH and National Library of Medicine (NLM).

Glossary

Create Study

A link to the Create an NDA Study page that can be clicked to start creating an NDA Study with information such as the title, journal and authors automatically populated.
Not Determined Publication

Indicates that the publication has not yet been reviewed and/or marked as Relevant or Not Relevant so it has not been determined whether an NDA Study is expected.
Not Relevant Publication

A publication that is not based on data related to the aims of the grant/project associated with the Collection or not based on any data such as a review article and, therefore, an NDA Study is not expected to be created.
PubMed

PubMed provides citation information for biomedical and life sciences publications and is managed by the U.S. National Institutes of Health's National Library of Medicine.
PubMed ID

The PUBMed ID is the unique ID number for the publication as recorded in the PubMed database.
Relevant Publication

A publication that is based on data related to the aims of the grant/project associated with the Collection and, therefore, an NDA Study is expected to be created.

Contact NDA Help Desk

Data Expected List: Mandatory Data Structures

These data structures are mandatory for your NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

For NIMH HIV-related research that involves human research participants: Select the dictionary or dictionaries most appropriate for your research. If your research does not require all three data dictionaries, just ignore the ones you do not need. There is no need to delete extra data dictionaries from your NDA Collection. You can adjust the Targeted Enrollment column in the Data Expected tab to “0” for those unnecessary data dictionaries. At least one of the three data dictionaries must have a non-zero value.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
Genomics/omics	770	07/15/2022	770	11/15/2022	770	Approved
Research Subject and Pedigree	320	01/15/2021	2,445	12/31/2021	2,445	Approved

To create your project's Data Expected list, use the "+New Data Expected" to add or request existing structures and to request new Data Structures that are not in the NDA Data Dictionary.

If the Structure you need already exists, locate it and specify your dates and enrollment when adding it to your Data Expected list. If you require changes to the Structure you need, select the indicator stating "No, it requires changes to meet research needs," and upload a file containing your requested changes.

If the structure you need is not yet defined in the Data Dictionary, you can select "Upload Definition" and attach the necessary materials to request its creation.

When selecting the expected dates for your data, make sure to follow the standard Data Sharing Regimen and choose dates within the date ranges that correspond to your project start and end dates.

Please visit the Completing Your Data Expected Tutorial for more information.

Data Expected List: Data Structures per Research Aims

These data structures are specific to your research aims and should list all data structures in which data will be collected and submitted for this NDA Collection. Please update the Targeted Enrollment number to accurately represent the number of subjects you expect to submit for the entire study.

Data Expected	Targeted Enrollment	Initial Submission	Subjects Submitted	Initial Share	Subjects Shared	Status
ADOS	195	01/15/2021	80	05/15/2021	80	Approved
Perceived Stress Scale	320	07/15/2021	904	07/15/2022	904	Approved
Delis-Kaplan Executive Function System (D-KEFS)	320	07/15/2021	1,337	12/31/2021	1,337	Approved
Medical History	320	07/15/2021	872	12/31/2021	872	Approved
Social Responsiveness Scale (SRS)	320	07/15/2021	469	12/31/2021	469	Approved
NEO Personality Inventory	320	07/15/2022	1,001	11/15/2022	1,001	Approved
Childrens Depression Inventory	320	01/15/2021	1,407	12/31/2021	1,407	Approved
Social Communication Questionnaire (SCQ)	320	01/15/2021	715	12/31/2021	715	Approved
Demographics	320	01/15/2021	855	12/31/2021	855	Approved
Childrens Communication Checklist-2 (CCC-2)	195	01/15/2021	192	05/15/2021	192	Approved
Parenting Stress Index (PSI)	320	07/15/2021	864	12/31/2021	864	Approved
Behavior Assessment System for Children (BASC)	195	01/15/2021	175	05/15/2021	175	Approved
Processed MRI Data	631	01/15/2021	647	12/31/2021	647	Approved
Wechsler Individual Achievement Test	320	07/15/2021	1,468	12/31/2021	1,468	Approved
Conners	320	01/15/2021	1,473	12/31/2021	1,473	Approved
Structured Clinical Interview for DSM (SCID)	320	07/15/2022	851	07/15/2023	851	Approved
Pubertal Development Scale (PDS)	320	01/15/2021	1,233	12/31/2021	1,233	Approved
Wechsler Intelligence Scale for Children	320	07/15/2021	1,468	12/31/2021	1,468	Approved
Diet/Food Diary/Log	320	07/15/2022	106	11/15/2022	106	Approved
Wechsler Adult Intelligence Scale	320	07/15/2021	852	12/31/2021	852	Approved
Social Skills Rating System (SSRS)	320	01/15/2022	471	05/15/2022	471	Approved
Kiddie-Sads (K-SADS)	320	07/15/2021	2,343	12/31/2021	2,343	Approved
Physical Exam	320	07/15/2021	1,460	12/31/2021	1,460	Approved
Adult Behavior Checklist (ABCL)	320	07/15/2022	12	11/15/2022	12	Approved
Pittsburgh Sleep Quality Index	320	07/15/2022	106	11/15/2022	106	Approved
Children Sleep Habit	320	07/15/2022	823	11/15/2022	823	Approved
Wide Range Achievement Test	320	07/15/2022	766	11/15/2022	766	Approved
Schizotypal Personality Questionnaire	320	01/15/2022	28	05/15/2022	28	Approved
Five Minute Speech Sample	320	01/15/2022	611	05/15/2022	611	Approved
Temperament in Middle Childhood Questionnaire	320	01/15/2021	1,456	12/31/2021	1,456	Approved
International Physical Activity Questionnaire	320	01/15/2022	106	07/15/2022	106	Approved
Affective Reactivity Index	320	01/15/2022	126	07/15/2022	126	Approved
Inventory of Callous-Unemotional Traits	320	07/15/2021	853	12/31/2021	853	Approved
Education and Employment History	320	07/15/2022	152	11/15/2022	152	Approved
Youth Self Report	320	01/15/2021	492	12/31/2021	492	Approved
ADHD Rating Scale	320	01/15/2021	2,435	12/31/2021	2,435	Approved
Conflict Tactics Scale	320	02/15/2022	505	06/15/2022	505	Approved
Drug Screen	320	07/15/2021	395	12/31/2021	395	Approved
Adult Self Report	320	01/15/2022	963	05/15/2022	963	Approved
Imaging (Structural, fMRI, DTI, PET, microscopy)	320	01/15/2021	645	12/31/2021	645	Approved
Broad Psychopathology Form	320	01/15/2021	1,471	12/31/2021	1,471	Approved
UPPS Impulsive Behavior Scale	320	07/15/2021	493	12/31/2021	493	Approved
EEG	270	04/21/2022	269	08/21/2022	269	Approved
Multidimensional Anxiety Scale for Children (MASC)	320	01/15/2021	1,414	12/31/2021	1,414	Approved
Alabama Parenting Questionnaire	320	01/15/2021	618	12/31/2021	618	Approved
Early Adolescent Temperament Questionnaire	320	01/15/2021	505	12/31/2021	505	Approved
Delay Discounting Task	320	07/15/2022	808	11/15/2022	808	Approved
Continuous Performance Test	320	01/15/2022	1,293	07/15/2022	1,293	Approved
Adult ADHD Self-Report Scale	320	01/15/2022	106	07/15/2022	106	Approved
Strengths and Weakness of ADHD Symptoms and Normal Behavior	320	01/15/2021	1,462	12/31/2021	1,462	Approved
Social Experiences Questionnaire	320	07/15/2022	1,478	11/15/2022	1,478	Approved
Impairment Rating Scale	320	07/15/2022	122	11/15/2022	122	Approved
Youth Risk Behavior Survey	320	01/15/2021	492	12/31/2021	492	Approved
Social Skills and Participation	320	07/15/2021	496	12/31/2021	496	Approved
Barkley Deficits in Executive Functioning Scale	320	01/15/2022	106	07/15/2022	106	Approved
O'Leary Porter Scale	848	07/15/2022	849	11/15/2022	849	Approved
Subjective Happiness Scale	320	07/15/2021	106	11/15/2022	106	Approved
NBack	320	01/15/2022	853	07/15/2022	853	Approved
Stop Signal Test	320	01/15/2022	1,247	07/15/2022	1,247	Approved
Internet Addiction Test	320	07/15/2022	106	11/15/2022	106	Approved
Spatial Span Task	320	01/15/2022	858	05/15/2022	858	Approved
SCID-RV-SFVA	320	07/15/2022	27	07/15/2023	27	Approved
Tapping Task	320	07/15/2022	852	11/15/2022	852	Approved
Customary Drinking and Drug Use Record	320	07/29/2022	431	12/29/2022	431	Approved
Godin Physical Activity	320	01/15/2022	106	05/15/2022	106	Approved
Children's Perception of Interparental Conflict Scale	320	07/15/2022	631	11/15/2022	631	Approved
Parental Involvement	320	07/15/2022	26	11/15/2022	26	Approved
Family Environment Scale	320	07/15/2021	857	12/31/2021	857	Approved
Teen Substance Use	320	07/15/2022	489	11/15/2022	489	Approved
Environmental Influences on Child Health Outcomes - Child Parent-Report	320	07/15/2022	31	11/15/2022	31	Approved
Environmental Influences on Child Health Outcomes - Child Self-Report	320	07/15/2022	26	11/15/2022	26	Approved
School Social Environment	320	01/15/2022	490	05/15/2022	490	Approved
Common Language Q-Sort	320	07/15/2022	861	11/15/2022	861	Approved
Diagnostic Team Data	320	07/15/2022	1,471	11/15/2022	1,471	Approved
Children's Perception of Interparental Conflict Scale for Younger Children	320	01/15/2022	1,264	05/15/2022	1,264	Approved
Academic Performance Rating System	320	01/15/2022	359	05/15/2022	359	Approved
Assessment of the type and frequency of societally deviant behavior in peer groups	320	01/15/2022	493	11/15/2022	493	Approved
Stressful Life Events Questionnaire	320	01/15/2022	46	07/15/2023	46	Approved
Developmental History and Substance Use Scale	320	07/15/2022	869	11/15/2022	869	Approved
Brief Inventory of Thriving	320	07/15/2022	106	11/15/2022	106	Approved

Structure not yet defined

No Status history for this Data Expected has been recorded yet

helpcenter.collection.data-expected-tab

Collection - Data Expected

The Data Expected tab displays the list of all data that NDA expects to receive in association with the Collection as defined by the contributing researcher, as well as the dates for the expected initial upload of the data, and when it is first expected to be shared, or with the research community. Above the primary table of Data Expected, any publications determined to be relevant to the data within the Collection are also displayed - members of the contributing research group can use these to define NDA Studies, connecting those papers to underlying data in NDA.

The tab is used both as a reference for those accessing shared data, providing information on what is expected and when it will be shared, and as the primary tracking mechanism for contributing projects. It is used by both contributing primary researchers, secondary researchers, and NIH Program and Grants Management staff.

Researchers who are starting their project need to update their Data Expected list to include all the Data Structures they are collecting under their grant and set their initial submission and sharing schedule according to the NDA Data Sharing Regimen.

To add existing Data Structures from the Data Dictionary, to request new Data Structure that are not in the Dictionary, or to request changes to existing Data Structures, click "+New Data Expected".

For step-by-step instructions on how to add existing Data Structures, request changes to an existing Structure, or request a new Data Structure, please visit the Completing Your Data Expected Tutorial.

If you are a contributing researcher creating this list for the first time, or making changes to the list as your project progress, please note the following:

Although items you add to the list and changes you make are displayed, they are not committed to the system until you Save the entire page using the "Save" button at the bottom of your screen. Please Save after every change to ensure none of your work is lost.
If you attempt to add a new structure, the title you provide must be unique - if another structure exists with the same name your change will fail.
Adding a new structure to this list is the only way to request the creation of a new Data Dictionary definition.

Frequently Asked Questions

What is an NDA Data Structure?

An NDA Data Structure is comprised of multiple Data Elements to make up an electronic definition of an assessment, measure, questionnaire, etc will have a corresponding Data Structure.
What is the NDA Data Dictionary?

The NDA Data Dictionary is comprised of electronic definitions known as Data Structures.

Glossary

Analyzed Data

Data specific to the primary aims of the research being conducted (e.g. outcome measures, other dependent variables, observations, laboratory results, analyzed images, volumetric data, etc.) including processed images.
Data Item

Items listed on the Data Expected list in the Collection which may be an individual and discrete Data Structure, Data Structure Category, or Data Structure Group.
Data Structure

A defined organization and group of Data Elements to represent an electronic definition of a measure, assessment, questionnaire, or collection of data points. Data structures that have been defined in the NDA Data Dictionary are available at https://nda.nih.gov/general-query.html?q=query=data-structure
Data Structure Category

An NDA term describing the affiliation of a Data Structure to a Category, which may be disease/disorder or diagnosis related (Depression, ADHD, Psychosis), specific to data type (MRI, eye tracking, omics), or type of data (physical exam, IQ).
Data Structure Group

A Data Item listed on the Data Expected tab of a Collection that indicates a group of Data Structures (e.g., ADOS or SCID) for which data may be submitted instead of a specific Data Structure identified by version, module, edition, etc. For example, the ADOS Data Structure Category includes every ADOS Data Structure such as ADOS Module 1, ADOS Module 2, ADOS Module 1 - 2nd Edition, etc. The SCID Data Structure Group includes every SCID Data Structure such as SCID Mania, SCID V Mania, SCID PTSD, SCID-V Diagnosis, and more.
Evaluated Data

A new Data Structure category, Evaluated Data is analyzed data resulting from the use of computational pipelines in the Cloud and can be uploaded directly back to a miNDAR database. Evaluated Data is expected to be listed as a Data Item in the Collection's Data Expected Tab.
Imaging Data

Imaging+ is an NDA term which encompasses all imaging related data including, but not limited to, images (DTI, MRI, PET, Structural, Spectroscopy, etc.) as well as neurosignal data (EEG, fMRI, MEG, EGG, eye tracking, etc.) and Evaluated Data.
Initial Share Date

Initial Submission and Initial Share dates should be populated according to the NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data will be shared with authorized users upon publication (via an NDA Study) or 1-2 years after the grant end date specified on the first Notice of Award, as defined in the applicable Data Sharing Terms and Conditions.
Initial Submission Date

Initial Submission and Initial Share dates should be populated according to these NDA Data Sharing Terms and Conditions. Any modifications to these will go through the approval processes outlined above. Data for all subjects is not expected on the Initial Submission Date and modifications may be made as necessary based on the project's conduct.
Research Subject and Pedigree

An NDA created Data Structure used to convey basic information about the subject such as demographics, pedigree (links family GUIDs), diagnosis/phenotype, and sample location that are critical to allow for easier querying of shared data.
Submission Cycle

The NDA has two Submission Cycles per year - January 15 and July 15.
Submission Exemption

An interface to notify NDA that data may not be submitted during the upcoming/current submission cycle.

Contact NDA Help Desk

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameFilter by Study Name	DOIFilter by DOI	AbstractFilter by Abstract	Collection/Study SubjectsFilter by Collection/Study Subjects	Data UsageFilter by Data Usage	StateFilter by State
Examining Diagnostic Trends and Gender Differences in the ADOS-II	10.15154/jxd2-vw05	Approximately 3–4 boys for every girl meet the clinical criteria for autism in studies of community diagnostic patterns and studies of autism using samples of convenience. However, girls with autism have been hypothesized to be underdiagnosed, possibly because they may present with differing symptom profiles as compared to boys. This secondary data analysis used the National Database of Autism Research (NDAR) to examine how gender and symptom profiles are associated with one another in a gold standard assessment of autism symptoms, the Autism Diagnostic Observation Schedule II (ADOS-II; Lord, C., Luyster, R., Guthrie, W., & Pickles A. (2012a). Patterns of developmental trajectories in toddlers with autism spectrum disorder. Journal of Consulting and Clinical Psychology, 80(3):477–489. https://doi.org/10.1037/a0027214. Epub 2012 Apr 16. PMID: 22506796, PMCID: PMC3365612). ADOS-II scores from 6183 children ages 6–14 years from 78 different studies in the NDAR indicated that gender was a significant predictor of total algorithm, restrictive and repetitive behavioral, and social communicative difficulties composite severity scores. These findings suggest that gender differences in ADOS scores are common in many samples and may reflect on current diagnostic practices.	77/5615	Secondary Analysis	Shared
Gender Differences: Confirmatory Factor Analysis of the ADOS-II	10.15154/4sxe-qh09	Purpose Recent research has suggested that autism may present differently in girls compared to boys, encouraging the exploration of a sex-differential diagnostic criteria. Gender differences in diagnostic assessments have been shown on the ADOS-II, such that, on average, females score significantly lower than males on all scales and are less likely to show atypicality on most items related to social communicative difficulties. Yet, gender differences in the latent structure of instruments like the ADOS-II have not been examined systematically. Methods As such, this secondary data analysis examined 4,100 youth diagnosed with autism (Mage = 9.9, 813 female & 3287 male) examined item response trends by gender on the ADOS-II Module 3. Results Multi-Group Confirmatory Factor Analysis results show that the factor loadings of four ADOS-II items differ across the genders. One SCD item and one RRB item are strongly related to the latent factor in the female group, while two RRB items have larger factor loadings in the male group. Conclusion The assumption of an identical latent factor structure for the ADOS-II Module 3 for males and females might not be justifiable. Possible diagnostic implications are discussed.	77/5615	Secondary Analysis	Shared
Comparison of Autism and ADHD using MRI mega-analysis	10.15154/j127-fw63	Autism and ADHD often co-occur, yet it remains unclear whether they share a common neurobiology or exhibit distinct resting-state connectivity differences. We conducted a cross-sectional mega-analysis of functional connectivity in 6–19-year-olds (n=10,168) focusing on autism and ADHD traits, followed by analyses of autism (n=764; n=893 NT) and ADHD (n=2,026; n=2,409 NT) diagnoses. In total, 12,732 participants were examined, with 3,528 included in both trait and diagnostic analyses. Autism traits/diagnosis were associated with lower connectivity among the thalamus, putamen, salience/ventral attention, and frontoparietal networks, while ADHD traits showed the opposite pattern. Both autism and ADHD groups, relative to NT, exhibited higher default mode–dorsal attention connectivity, aligning with ADHD trait findings. Despite their frequent co-occurrence, autism and ADHD traits displayed distinct neural signatures, albeit with small effect sizes.	1479/3178	Secondary Analysis	Shared
THE OREGON ADHD-1000: A LONGITUDINAL DATA RESOURCE ENRICHED FOR CLINICAL CASES AND MULTIPLE LEVELS OF ANALYSIS	10.15154/1528485	The fields of developmental psychopathology, developmental neuroscience, and behavioral genetics are increasingly moving toward a data sharing model to improve reproducibility, robustness, and generalizability of findings. This dataset uses a case-control design for ADHD and non-ADHD youths. This study includes: multi-method, multi-measure, multi-informant, multi-trait data, and multi-clinician evaluation and phenotyping. It spans >12 years of annual follow-up with a lag longitudinal design allowing age-based analyses spanning age 7-19+ years. Measures span multiple levels of analysis, including genetic and epigenetic array; neuroimaging; psychophysiological; psychosocial; and clinical and functional outcomes data. Note 1: This study includes baseline assessments from 1483 children in the Oregon ADHD 1000 of whom a subset were followed longitudinally. Parent measures about the child are included with the child. The N shown for the study is larger than 1483 because parents also reported on themselves for some measures (e.g., their own ADHD symptoms); when they did so, they were included as participants with their own NDAR GUIDs. This is a requirement of how the NDA creates data sets. Parent ratings of children can be found under the child IDs. Parents are linked to their children in the subject file. Any measures described in the resource paper in Developmental Cognitive Neuroscience or in the notes, that are not currently available, are being added week by week. Note 2: Some participants in this study were also in a study with ASD participants in collection #1955. Those subjects are identified in the notes of the subject file. Note 3: Collection #3753 includes a highly comparable cohort, the Michigan ADHD 1000, at a single time point. That data can be used for replication and generalizability of findings related to ADHD. Note 4: The study is described in detail in Nigg et al. (2023) Developmental Cognitive Neuroscience: https://authors.elsevier.com/sd/article/S1878-9293(23)00027-0	2464/2464	Secondary Analysis	Shared
Age-dependent effects of psychostimulants on brain iron content in ADHD: a longitudinal MRI study	10.15154/x8w4-dn69	Background: Attention Deficit/Hyperactivity Disorder (ADHD) is a common neurodevelopmental disorder in school-aged children and has been associated with impaired brain iron homeostasis. Evidence has shown that psychostimulant treatment may affect brain iron content in children with ADHD, however, longitudinal evidence remains limited. The present longitudinal study investigated the effect of psychostimulant treatment duration and age at treatment onset on brain iron accumulation in children with ADHD. Methods: Neuroimaging and phenotypical data were collected from the publicly available Oregon ADHD-1000 dataset. After screening, data from 29 psychostimulant-medicated children with ADHD and 38 neurotypical children were included. Individual General Estimating Equation (GEE) models were used to investigate the effect of groups, treatment duration and age at treatment onset on brain iron content across time. Bonferroni correction was applied for multiple comparisons. Results: GEE analyses revealed no significant group effect on nigral, thalamic and striatal iron content. However, a significant group effect was found in the globus pallidus, with lower iron content in psychostimulant-medicated children with ADHD compared to their NT peers. Within the ADHD group, Bonferroni corrected post hoc comparison showed that earlier treatment onset (≤ 8 years) was associated with significantly higher iron content in the basal ganglia and thalamus compared to later treatment onset (≥ 9 years). Conclusion: Evidence has shown that medication-naïve children with ADHD may exhibit lower brain iron content compared to NT children and the current findings suggest that age at psychostimulant treatment onset, rather than treatment duration, may influence brain iron accumulation in children with ADHD.	29/29	Secondary Analysis	Shared

* Data not on individual level

helpcenter.collection.associated-studies-tab

Collection - Associated Studies

Clicking on the Study Title will open the study details in a new internet browser tab. The Abstract is available for viewing, providing the background explanation of the study, as provided by the Collection Owner.

Primary v. Secondary Analysis: The Data Usage column will have one of these two choices. An associated study that is listed as being used for Primary Analysis indicates at least some and potentially all of the data used was originally collected by the creator of the NDA Study. Secondary Analysis indicates the Study owner was not involved in the collection of data, and may be used as supporting data.

Private v. Shared State: Studies that remain private indicate the associated study is only available to users who are able to access the collection. A shared study is accessible to the general public.

Frequently Asked Questions

How do I associate a study to my collection?

Studies are associated to the Collection automatically when the data is defined in the Study.

Glossary

Associated Studies Tab

A tab in a Collection that lists the NDA Studies that have been created using data from that Collection including both Primary and Secondary Analysis NDA Studies.

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